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Tourettes Syndrome

Parts of this were taken with permission from Essential Oils Overview and Reference Guide, published by: The Family Tree, 2008

Summary

Tourette’s syndrome is a neurological disorder that starts in childhood and is characterized with the child making uncontrolled repetitive movements or sounds that are referred to as tics. These tics may include actions such as jerking the arm, shrugging shoulders, jumping, kicking, blinking eyes, clearing throat, coughing or blurting out offensive words.

These tics usually begin at about age 7 (anywhere from 2 to 12) and are more common in boys than girls. Heightened emotions, excitement or anxiety, can increase tics as opposed to a calm emotional state where the tics subside. Tics are usually diminished during rest and sleep. It is also reported that some with Tourette’s Syndrome may experience other neurological problems such as ADHD, OCD, depression or anxiety disorders. Many experience the symptoms being reduced in their late teenage and early adult years and with the exception of the discouragement that comes from being noticed there are no know detrimental effects to health or longevity from the disorder.

The reason for Tourette’s Syndrome is not yet known. It is a neurological disorder that is believed to be associated with the basal ganglia, frontal lobes or cortex regions of the brain and the neurotransmitters (dopamine, serotonin, and norepinephrine) that facilitate communication between nerve cells.

 

[search helps: Gilles de la Tourette, Chronic motor tic disorder, Facial tics, Transient tic disorder, Turret's, coprolalia, echolalia]

Oils, blends & products recommended:

Please note: The information provided below is a compilation of suggestions made by those that have used essential oils and has NOT been scientifically verified with clinical tests nor reviewed by medical experts. It is anecdotal information and should be treated as such. For serious medical concerns please seek professional medical attention.

Oils & Blends:  Grounding BlendC, Invigorating Blend, Frankincense, Focus Blend, Calming Blend, Vetiver and Peaceful Child Blend (Vetiver, Lavender, Ylang Ylang, Frankincense, Clary Sage, Marjoram with FCO)

Essential oils based products:

Also consider: Helichrysum, Lemon, Myrrh

Note: to understand the E and C superscript go to Home and scroll to New Helps.

Suggested protocols:

For waking hours to calm and improve concentration use Grounding Blend, Calming Blend or Invigorating Blend with Frankincense or Vetiver. Application can be done in a number of ways:

  Topically on the feet and back of neck morning, mid day and late afternoon.

  Carry an inhaler, direct inhalation, terracotta pendant for children.

  Diffuse if surrounding environment allows.

Focus Blend is a blend in a roller bottle for helping maintain focus than can be carried and used anytime.

For more relaxed sleep. Frankincense, Lavender and Calming Blend have been helpful to many. Apply topically to feet, topically under the nose, a few drops on the pillow case or diffuser on the night stand all help.

 

The Peaceful Child Blend is suggested and distributed by Deborah Gardner (not a (...) blend). Deborah formulated the blend for personal needs with her own child and has had great success using it. Here is a summary of her suggestions:

·   Use blend at least twice a day (AM/PM) over the heart, on the bottoms of feet, and at night under the nose (if the child doesn't mind the scent).

·   Cut consumption of refined sugars at least by 1/2 and eliminate any treats or foods containing red dyes and MSG.

·   Try adding an essential fatty acid supplement (Omega 3s or xEO Mega) plus 50 mg. of magnesium glycinate to the child's diet.

[For more important details and to order the blend directly see Deborah’s website by searching for Peaceful Child Blend.]

 

Here are some other helpful hints folks have mentioned:

·   Some have found that some children with neurological problems may be particularly sensitive to smell and may resist the use of oils.  Applying to the feet, even after they are asleep, can circumvent this problem.

·   Experimenting with various oils with similar characteristics can lead to the best alternatives. Some find it beneficial to rotate oils on a weekly or monthly timeframe to get maximum benefits.

·   Some highly recommend 2 drops of Frankincense under the tongue once a day.

Experiences and Testimonials of others

Please note: The information provided below is a compilation of the experiences of others who have used essential oils and has NOT been scientifically verified with clinical tests nor reviewed by medical experts. It is anecdotal information and should be treated as such. For serious medical concerns please seek professional medical attention.

Submissions directly to  EverythingEssential.me.  Our thanks to:

      Amanda
     
Amanda - I have Tourette's Syndrome coupled with ADD. I have been using Calming Blend, Frankincense, and Invigorating Blend. I have noticed that the combination helps me stay calm and concentrate so I can get my work done during the day. I use it aromatically (using direct inhalation) and topically on the back of my neck and feet. At night I only use the Calming Blend and Frankincense to help calm my brain so I can sleep. At night I also use the two oils aromatically (using direct inhalation) and topically (back of neck and feet).

Submissions directly to  EverythingEssential.me.  Our thanks to Amanda for this additional insight:
     
Amanda - On a side note my family (on both sides) has a history of Tourette's and ADD/ADHD. We have noticed over the years in the tics that they are slowly going away. On my Mom’s side of the family: my Great Grandfather had some mild verbal tics, my Grandma has physical tics, my Mom is a carrier so she doesn’t have tics, and I have mild physical tics.

 

Melanie - Would someone please post the peaceful child blend recipe and how you used it, success stories etc. I have been searching for it on the website and I can't seem to locate it. Thanks so much!!

Editor’s note: The following is one version of the Peaceful Child Blend. Please see near the end of this post comments from Deborah on the original blend that includes Lavender as the second ingredient and how she used it with Tourette’s.

Monica - Here is the blend recipe: 85 d Vetiver (1/3 bottle), 30 d Ylang Ylang, 20 d Frankincense, 15-17 d Clary Sage, 10 d Marjoram, 35 d FC0 (optional)

Rochelle - I work with a therapist who diffuses the Peaceful Child blend in her office.  The difference in her sessions - especially with add/adhd clients - has been significant.  I now keep an inventory in her office, which includes the blend, diffusers, roll-ons and terracotta pendants (great for elementary age children).  People are so drawn to this blend - it is amazing. I have another acquaintance who I've helped her make a 'perfume' with the blend.  She had a small perfume atomizer and uses 1/4 tsp Epsom salt, Peaceful Child blend to the strength she likes and fills with purified water.  She loves it! Personally, I put it on the bottom of my foot in the morning and over my heart in the evening.

Anne - I've been trying to find a quiet moment when I can make a roller ball of the peaceful child blend for my daughter 7years old ... in the mean time she loves the white fir and wears it in a necklace diffuser with great calming results. And then the (...) ornament we've pinned to her pillow and use Calming Blend (which has many of the Peaceful child blend in it already) overnight... she is calmer, though not necessarily sleeping more... but happier to just play until tired rather than come out and wake me a million times!

Jeannie - I used Peaceful Child blend on an 8 year old with severe ADHD and it did  not work.  Looking for alternative recipes as his parents are at wits ends.

Deborah - Hi Melanie, I created the Peaceful Child blend for my son who has Tourette’s Syndrome, ADHD, anxiety, sleeping disorders, and Oppositional Defiance Disorder. For children with sever ADHD, the blend will truly help, but you will have to do a few other things in addition.

First off, make sure to use the blend consistently--at least twice a day (AM/PM) over the heart, on the bottoms of feet, and at night under the nose (if the child doesn't mind the scent). Secondly, cut consumption of refined sugars, or at least reduce it, by 1/2 (especially high fructose corn syrup). Eliminate any treats or foods containing red dyes and MSG. Thirdly, try adding an essential fatty acid supplement (Omega 3s or EXOmega) plus 50 mg. of magnesium glycinate to the child's diet. You can buy the magnesium in a liquid form or in capsules.

It should be noted that lavender is missing in all these Peaceful Child recipes online. It is the 2nd ingredient and plays a major role in the calming properties. I don't actually give out the correct recipe, but you can order it at my web site. Lastly, if all else fails, I highly recommend getting your child on a super absorbable micronutrient brain supplement called "EMPower Plus" (powdered drink or capsules). My son has to take this in addition to Peaceful Child. It is very expensive, but works! I hope this information has been helpful. Kindest regards, Deborah D. Gardner

 

Skipper - My good friends 13 year old son has developed ticks and posturing and the medication he is on is not helping much. Being at such a tender age, other kids tend to make fun and it is really affecting him emotionally it is also starting to get in the way of his normal daily function. His mother desperately wants help!

Kathy - I think many people believe that vaccines, which contain aluminum, msg, neuro-toxins, and cyto-toxic ingredients could be the cause of neurological diseases like Tourettes.  Children receive up to 70 or more different types of vaccines by the time they reach school age, and I would look for and follow any protocol possible to remove these toxic agents.

My experience is that using the oils in every way and often will begin to soften the horrible restless effects of diseases like Tourette's.  If it were me, I would institute the intake of natural chelators such as are found in helichrysum. I would also use oils that are high in sesquiterpenes like Ginger, Ylang Ylang and Myrrh and oils that cross the blood barrier like Frankincense, Vetiver and Sandalwood.

I would also suggest oils like Grounding Blend to and Calming Blend to calm and balance the body's entire body's energy system. Use your intuitions to decide application techniques.  But definitely consider a spinal technique, topically to the head and neck, and under the tongue with Frankincense.

JJ - Frankincense, helichrysum, myrrh and Vetiver.  I would incorporate these in a spinal treatment with Grounding Blend and Calming Blend.  I would also diffuse Vetiver and Grounding Blend in his room at night. Oils do well with neurological issues, it just takes patience and consistency.

Rob - I would put Frankincense under the tongue.  Apply Frankincense and Helichrysum on the spine and brain stem.  Use Grounding Blend and Calming Blend for calming the body.

 

Editorial note: I shortened Kendra’s comments below to be consistent with the flow of the website. Hopefully I caught the intensity and sincerity she has on this problem.

Kendra -There is totally no "oil" information in this post.  I apologize, but I'm going to send it… I think that medication can be wonderful, (and I know that there are a lot of people out there that totally disagree with me and I respect that).  But when you are living with a spouse or a child that suffers from some kind of so called "disorder" where the brains electrical system might not be functioning at a high enough frequency, it can be really tough.  Day in and day out.

In no way am I saying that medication is an answer to your problems, but until you can find something or someone that can help you, sometimes you need to go that route, for a while. … I work with a child psychiatrist that is extremely intelligent when it comes to medicating children.  He is wonderful! (But) I will give you a quick example of how I have seen "other" doctors prescribe medication:

Usually if a child is ADD/ADHD they prescribe a stimulant, for example Adderall, which ups your dopamine, so the kid takes that in the morning, so he can concentrate in school, then at night before he goes to bed, the dr. might prescribe something to help the child's brain slow down, so he can sleep, to lower his dopamine. So it's a vicious cycle.  How would you like that to be going on in your head?  …   Can you imagine how you would feel. You are taking upper's and downer's. You would be all over the place.

You tell that Mom that "she" will get through this pain. Like I have said before, a parent with a "normal child" will never, never, never understand the things that you have to go thru with that child, each and every day.  (or the joy that you also receive from that child!).   You have her hug that kid so tight, don't let him go and tell him how very precious he is!   I'm sure if you ask her, she will tell you how intelligent he is, way above the other kids, and how intuitive, also!   They will both get thru this, in the next couple of years,

She has the oils and that will also open a whole new avenue to other things to do for that 13 yr old young man! By the way, I was reading all the of the posts and what they were suggesting to use, I don't know if this boy has sensory issues, but when the Mom applies these oils, tell her to have her son smell them first (to make sure he accepts them).

 

Amanda - Skipper, I saw your post and I wanted to respond since I have Tourette’s and have been in your friend’s son’s shoes. I took clonodine for my ADD and dexodrine for my Tourette’s. I started it when I was diagnosed at about 8 years old till about 2 and half years ago at the age 25. The medication helped keep me calm and focus without making me drowsy, but didn’t really help with the tics. Honestly, nothing can really help with this (except surgery). It wasn’t till after I went off the meds that I realized I had issues with anxiety. For about 10 years now I have done yoga which helped with keeping my mind calm throughout the day and helps with stress (especially at night so I can sleep).  

A couple of months ago I started with the oils and it has changed my life.  The oils help with the anxiety and constant thinking so I can get through my day. Each person is different, but I hope your friend’s son doesn’t give up hope. He will have a strong future if he’s willing to work hard and believe in himself. If it wasn’t for having a tutor, psychologist, my teachers, and supportive parents I wouldn’t have been able to accomplish as much as I have. Yes, your friend’s son will have a lot of hard times, but he needs to choose whether those rough times are going to make him stronger or let him fall apart.

About the bullying… since he is most likely going through puberty, the tics are the worst during this time.  The best thing to do is to educate people at the school. I recommend the teachers, parent boosters, and/or student leadership team to create an ability awareness day/week. This will teach about people’s various abilities and how it’s okay to be different. They can have speakers come that have over-come adversity, centers on what it’s like to have various disabilities (physical impairments, blindness, deafness, autism, Tourettes, etc.).  I have noticed a huge difference in the schools that have done this. Students and staff are more accepting, tolerant, and less ignorant of peoples’ differences at the schools that educate people on others’ differences vs. those who do not.

I hope this information helps and that you pass along this information to your friend and her son. He should know he’s not alone with this condition. He will have to work harder than most, but he will come out that much wiser and stronger from it. When he gets older I hope he realizes what a blessing it is to have an extra challenge in his life. It makes you a better person in the end.

Protocols folks recommend for children

 

 

Diet and Nutritional complements to essential oils

 

What Science & Research are saying

 

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NOTE: The advice shared in this site has not been evaluated by the FDA. The products and methods recommended are not intended to diagnose, treat, cure or prevent any illness or disease, nor is it intended to replace proper medical help. As members offer or look for answers, kindly understand that essential oils work to help to bring the body into balance - thus helping the body's natural defenses to restore homeostasis. Essential oils are not used to "treat" medical problems.