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Fibromyalgia

Parts of this were taken with permission from Essential Oils Overview and Reference Guide, published by: The Family Tree, 2008

Summary

Fibromyalgia is a syndrome that includes long-term, body wide pain in the muscles and connective tissues.  This characteristic pain may be accompanied by fatigue, headaches, and difficulty with sleep, anxiety, and depression.  Females in the age group 20 to 50 are the most likely to suffer from fibromyalgia.

A definite cause has not yet been identified but research shows that those that suffer might have a difference in the central nervous system that makes them more sensitive to pain.  Some suggest this difference in the CNS could have been as a result of childhood stress or prolonged periods of stress.  Others suggest that physical or emotional trauma may trigger the syndrome.

Since there are no definite abnormalities with a physical exam some physicians consider it controversial to diagnose the symptoms as fibromyalgia.  The National Institutes of Health and the American College of Rheumatology disagree and the latter suggests a test involving nine paired tender points on the body.  The points are located:

Fibromyalgia     1. At the back of the neck behind the ear, where the neck muscles attach to the base of the skull.

     2. About halfway between the base of the neck and the tip of the shoulder.

     3. At the spot where the back muscles attach to the shoulder blade.

     4. On the front of the neck above the collarbone.

     5. Just to the right and left of the breastbone (sternum) about 2 in. below the collarbone.

     6. On each forearm just below and to the outside of the crease of the elbow.

     7. Just above and to the outside of each buttock.

     8. On the outer upper leg just behind the bony part of the hip (this point is easier to find when standing).

     9. On the inside of each knee.

The guidelines are that when these tender points are pressed and if eleven or more have pain it is a clear diagnosis of fibromyalgia.

Is Fibromyalgia an autoimmune disease?

Although some suggest fibromyalgia is an autoimmune disease many experts say that it is not.  Here is an opinion given by Anne Hillebrand (11/8/2006) on AllExperts.com.

"An autoimmune disease is one in which the immune system mistakes its own tissues for non-self tissue and makes an inappropriate attack. These diseases can affect the tissue which bind body tissues and organs together, nerves, muscles, endocrine system (system that directs your body’s hormones and other chemicals), and digestive system.

From all I can tell, Fibromyalgia is not a case of the body doing something it should not do.  It is a case of the body failing to do something it should do.   What it is failing to do is produce and control correct amounts of Hyaluronidase, an enzyme.  This enzyme should be determining the correct viscosity of a chemical called Hyaluronan (formerly called Hyaluronic Acid).  

You think of this as the clear fluids throughout your body.  Saliva, vaginal lubrication, synovial fluid and yes, the clear fluids that are supposed to be keeping your eyes moist.  It is produced at the end of your arterial capillaries, should rinse, lubricate and feed all the cells and then pass into the lymphatic capillaries to be cleaned and returned. In Fibromyalgia, the clear fluid is not moving correctly. It is too thick and cannot leave the body tissue and go out through the lymphatic capillaries."

Oils, blends & products recommended:

Please note: The information provided below is a compilation of suggestions made by those that have used essential oils and has NOT been scientifically verified with clinical tests nor reviewed by medical experts. It is anecdotal information and should be treated as such. For serious medical concerns please seek professional medical attention.

Oils & Blends:  Grounding Blend, Invigorating Blend, Soothing BlendC, Joyful Blend (Elevating Blend), HelichrysumC, Lemon, MelaleucaC, OreganoC. Calming Blend, Detoxifying Blend

Essential oils based products: Basic Vitality Supplements (LLV), GI Cleansing Formula, Probiotic Defense Formula, Detoxifying Blend Detoxification Complex

Also consider: Massage Blend technique, BasilC, LavenderC, MarjoramC, Peppermint, ThymeEC, Wild Orange

Note: to understand the E and C superscript go to Home and scroll to New Helps.

Suggested protocols:

see also general suggestions for autoimmune disorders.

Here is a summary of the experiences that others have had.  As with many health concerns fibromyalgia is best helped on multiple levels.  Experiences include help for pain, cleansing, strengthening the immune system, building nutritional balance, and emotional support.  Couple these with the possibility that many have used prescription medication and the transition or addition of oils may require patience to find a proper balance. 

PAIN:  Soothing Blend, Massage Blend and other specific oils applied topically to specific points of discomfort.  Also using the Massage Blend Technique on a frequent and consistent basis.

NUTRITIONAL BALANCE: Almost everyone insists that using nutritional supplements such as (...) Basic Vitality Supplements (LLV) are a must.  Additionally eliminate harmful foods and habits.

CELLULAR SUPPORT & HEALING: 8 drops or 1 capsule of Essential Oil Cellular Complex 2 times per day. 2 -3 drops of Frankincense 2 - 4 times daily under the tongue or internally with a spoonful of honey or in a capsule.

STRENGTHENING THE IMMUNE SYSTEM:  A major component of the Massage Blend Technique mentioned previously is the application of essential oils and blends to assist in building strength in the body’s immune system.  Beyond this commonly recommended is the (...) product, Probiotic Defense Formula (ProBiotics), designed to support healthy digestive functions and immunities.

CLEANSING:  Both a liver and Candida Cleanse are mentioned. 

·  Liver - (...) Detoxifying Blend Detoxification Complex and Detoxifying Blend addresses the liver, kidneys, bowels and skin. see Detoxification for details.

·  Gastrointestinal - The theory that a root cause of autoimmune disorders is Candida is detailed in autoimmune disorders. To address Candida use the GI Cleansing Formula cleanse detailed under  Detoxification. Note that some with autoimmune disorders are particularly sensitive and should start this cleanse with 1 GX capsule daily for 2 days, if no skin or digestive reactions increase to 2 capsules for 2 days and then if no reactions to the prescribed 3 per day.

EMOTIONAL SUPPORT:  These types of health concerns can take an emotional toll on folks so using essential oils and blends to relieve depression, stress, anger and/or to calm nerves is also very helpful.

Experiences and Testimonials of others

Please note: The information provided below is a compilation of the experiences of others who have used essential oils and has NOT been scientifically verified with clinical tests nor reviewed by medical experts. It is anecdotal information and should be treated as such. For serious medical concerns please seek professional medical attention.

Submissions directly to  EverythingEssential Google Group.  Our thanks to:

      Belinda

Belinda - I just want to share that since using (...) products (LLV, GX/Probiotic Defense Formula multiple times, Terrazyme, plus various oils) for the last 8 months I have essentially been brain fog free. Yahoo!  I have had fibromyalgia for about 11 years, and have been plagued with the nasty fog for most of those years, despite spending millions on all sorts of herbs and potions from my Naturopath.  (Those other products definitely did help, but nothing has been able to shift it like (...) has!)  At times the fog was debilitating, agonizing just being awake, but of course no one can sleep 24/7.  At my worst I had scary episodes like the time I couldn't remember how to spell my own son's name (four letters long!), and the time I had a near miss in the car when I couldn't remember which peddle was the brake and which was the accelerator - and not just for an instant, but repeatedly all the way home for 10 very long minutes. 

But I am happy to say those days are behind me!  It only took about 10 days for the shift, and it's now been 8 months of clear thinking!  I feel like I have "ME" back, and am now able to focus and concentrate for long hours without a problem, and no headaches!  For example, I did 17 hours work on the computer over the last 2 days and my head stayed clear and pain free the entire time - a miracle!  This would have been impossible in times past.

Along with this, (...) has also given me relief from terrible digestion, which I had suffered with for years.  For months before starting (...) I had gut pain/bloating 24/7 from everything I ate (despite taking enzymes and HCL from my Naturopath), so couldn't enjoy eating at all, yet had to eat due to being hypoglycemic.  Now I have had 8 months of great digestion!  Yippee!  Which is kind of not surprising, as I have since learned that digestion and brain fog are usually linked.

Needless to say I am so grateful for (...) and for my wonderful doctor who introduced me to the products.  Happy days

Sally - Hi Belinda, Please post or attach the protocol here. That would be a help to many. I think many people are experiencing what you have experienced. What a powerful testimony.

(Editorial note: plus lots of other requests to see the protocol)

Belinda – Hi, I've attached the protocol given to me by my doctor.  Helen, his name is Dr Ismail, but I live in Perth Australia so I'm guessing he is probably a little too far away for you?  Hope it helps.  Cheers, Belinda

(...) Supplement Usage Recommendations

MONTH 1

Days 1-10 *

•  Basic Vitality Supplements (LLV) Pack (LLV) - as directed (i.e. Alpha CRS, xEO Mega and Microplex – 2 caps of each with breakfast, and 2 caps of each with dinner. Best to take mid-meal instead of at the end of the meal (to avoid the possibility of caps repeating on you).

•  GI Cleansing Formula - Take 1 capsule with a meal on Day 1, then build to 3 caps a day (one at each meal) over the following day or two (continue taking 3 caps a day till Day 10).

•  Terrazyme - 1 capsule 3 x per day with food – at start of meal or mid meal.

•  Lemon Oil – minimum of 2-3 drops in a glass of water 3 x daily (can drink more lemon oil and water than this if you wish – 10-12 drops lemon oil a day is good). Remember to use a glass, ceramic or stainless steel container to drink your lemon water from – NO PLASTIC!

•  Frankincense – 4 drops under tongue 2 x daily

•  Grounding Blend – rub 1-2 drops under soles of feet each morning

* Please note that you may experience nausea, tiredness, headaches etc. during the first 10 days. This is normal and will pass.

 

Days 11-30

•  Basic Vitality Supplements (LLV) Pack (LLV) as directed

•  Probiotic Defense Formula – Take 1 capsule 3 x daily for 5 days, then stay on 1 – 2 caps a day

•  Terrazyme – 1 cap 3 x daily with meals

•  Lemon Oil – minimum 3 drops in water 3 x daily (up to 12 drops a day)

•  Frankincense – 4 drops under tongue 2 x daily

•  Grounding Blend – rub 1-2 drops under soles of feet each morning

 

MONTH 2

Repeat Month 1 as above and add:

•  Detoxifying Blend Caps – 1 cap with breakfast, 1 cap with dinner

•  Metabolic Blend Metabolic Blend – start with 3 drops 3 x daily (in glass of water, or can shot glass it or take drops under tongue and wash down with water). Build up to 3-5 drops 3-5 x daily (maximum 25 drops daily)

* Highly beneficial to also use Calming Oils/Blends for stress throughout the day... such as Lavender, Calming Blend, Blend for Women, Grounding Blend etc.

 

Jessica - I have a friend who was just diagnosed with a condition in which the body starts to produce antibodies that actually attack the body.  I don't know what it is called but it sounds bad.  Is anyone familiar with what I am describing?  From what she described, I recommended the Basic Vitality Supplements (LLV) pack to start along with a couple of oils for the symptoms. Any info would be great.

Diane - Is there a particular part of her body being attacked, or is it her entire body?Either way, it's an autoimmune disorder. One of the best ways she can try to stop this is to stop eating dairy foods, grains and legumes as these have lectins (a particular type of protein) that can bind with almost any type of tissue in our body, and we can't digest them and break them down. Because of this, they increase intestinal permeability (leaky gut syndrome), allowing partially digested food proteins and fragments of gut bacteria to get into our bloodstream, some of which are very similar in composition to our body's cells. Our immune system tries to attack the invaders, but attacks the other cells as well because it gets confused by the similarities. Using citrus oils and some of our other protocols might also help, but diet is going to be key in her treatment.

Kathy - There is a group of illnesses called "autoimmune disorders" where the immune system attacks the body’s own organs and tissues. They include multiple sclerosis, rheumatoid arthritis, fibromyalgia and other less common ones such as scleroderma.  I would treat for candida…GI Cleansing Formula followed by Probiotic Defense Formula to start. I would also look at my diet and eliminate vinegar and malt (which includes barley malt and maltodextrin) to start.

Cory - Oils high in monoterpenes would be good because they will re-progam the cells so that they stop fighting each other - Grapefruit, Frankincense, Cypress are at the top of the list.

 

Gin (a separate comment) - I take Probiotic Defense Formula daily. I've taken a probiotic daily for years. My doc recommends it to all her fibromyalgia patients. Most autoimmune disease sufferers and those with chronic candida benefit from taking it daily. The nice thing is that it can't hurt. For kids, one a day.

 

Lisa - Has anyone had success with (...) Essential Oils and Fibromyalgia? If so, please share the details.  Thanks!  

Pat - I have seen great success using essential oils for Fibromyalgia. [The main one that should assist in this condition is the Candida Cleanse. Dr. Hill stated that auto immune disease's can be helped by taking the following blend:

·   5 drops of Lemon

·   5 drops of Melaleuca

·   3 drops on Oregano

Put into a gel cap and take internally once a day for thirty days, rest two weeks and repeat the procedure.]  Editorial note: this is not replaced with the GI Cleansing Formula/Probiotic Defense Formula cleanse, see Detoxification for details.

Also go on the Basic Vitality Supplements (LLV) pack and be prepared for some wonderful changes. The Probiotic Defense Formula will also help to build your immune system.

Pat - Mix one 15 ml bottle each of Lemon and Melaleuca and 2/3rd of a 15ml bottle of Oregano in a 2 oz amber glass bottle with a dripper top. Add one squeeze (about 20-25 drops) of the dripper into a size 00 capsule and take each morning until bottle is gone. Also take the nutrition and stay away from "bad" foods.

Nicole - I have had several people start taking the Basic Vitality Supplements (LLV) Pack that have Fibromyalgia and they have had great results. I would suggest also taking the supplements for sure!

Anonymous - When you are doing the Candida Cleanse, are you supposed to take the capsules at a different time than the Basic Vitality Supplements (LLV) capsules or is it okay to take them at the same time?

Pat - You can take them together. They suggest that if you are taking the Probiotic Defense Formula that you do not take them at the same time as the Candida Cleanse. You can do it the same day just at different times. As for the LLW and Candida, it seems to be fine. I however did my LLW and then a couple hours later I would take the Candida Cleanse blend. Some say it doesn't matter, but I do not have enough knowledge to make that decision so I space it a couple of hours.

Kathy - Because Fibromyalgia may be linked to a deficiency of trace minerals and natural supplements; I would get on the LW supplements right away.  Soothing Blend will help with pain issues as well as Massage Blend – place wherever there is pain or discomfort.  You can add additional Marjoram to enhance the analgesic benefits.  I would personally make a salve using VCO, or you can use another carrier to facilitate the massage.

A weekly, intense, stimulating, aligning massage to the spine has been effective for some folks with Fibromyalgia.  Consider for oils Grounding Blend and Joyful Blend (Elevating Blend) for aligning and depression.

I would also search for a blend or oil for relieving stress and anger, bringing peace and contentment.  Consider Peppermint and Frankincense using cup and inhale.

Finally, help her find someone with a sympathetic hand and loving, understanding touch to be consistent in daily applications.

Rob - People who are consistently on the lifetime wellness and have fibromyalgia or other chronic pain are beginning to recognize that their symptoms are dissipating. I would for sure consider Massage Blend, Soothing Blend, Marjoram, Frankincense and others essential oils depending on specific symptoms.  The axiom that rings most true for people with fibromyalgia is;  "essential oils, everyday in every way"

Consider Digestive Blend, Peppermint or Ginger to control nausea. Use your intuition, and let your body tell you what oils is best for you.

 

Mysti - What oils work the best for Fibromyalgia? I'm thinking a combo of Massage Blend, Soothing Blend and Grounding Blend. Any thoughts?

Julie Ann - I have seen success by starting off on the liver cleanse...1 drop Peppermint, 1drop Lemon in 1 Tbsp of fresh Lemon juice with approximately 2-3 ozs of water every morning FIRST thing. Your liver is capable of 732 functions daily and with Fibromyalgia a toxic liver is a sign of a toxic body.    ASAP the LLW program with the Massage Blend oils and technique.  I then add a 40-minute detoxification bath using Lavender, Wild Orange or Calming Blend for the soothing aspect they bring.  If they will get the acidity out and alkalinity in, their problems will ease and over time go away.

Chris - I have not heard of this cleanse before.  How long do you do this?

Julie Ann - I have been doing it for years.  I had a very toxic liver with a pain in my upper back which was not a backache.  Come to find out it was the pressure point for the liver.  I had a test done which showed my liver was extremely toxic with numbers off the charts.  I started on the liver cleanse and within 3 months my liver had improved over 700%.  The doctor was astounded.  He said he had never seen such an improvement and asked what was I doing?  It was just this simple liver cleanse.  I have been in the natural field for 27 years and sometimes the simple things are the most potent.  The detoxification baths are absolutely vital if someone is going to get well.  The sicker they are the more baths they take.  I tell others to take one every day if they have serious issues.  I myself did away with a breast tumor that was 3 inches long, 2 inches wide, and 2 1/2 inches deep in 8 weeks to the day I started the daily detoxification baths and using the essential oils on it.

 

Brooke - I have a good friend whose husband (about 37) has been in a ton of pain for about 2 years.  Many times his feet hurt so bad he cannot go to work.  His overall health has really been suffering as well.  He has had multiple tests - everything from Diabetes, Gout, Lupus, Crones, etc. to try to figure out what is wrong - and has tried several different drugs to help, but so far - nothing has.  It has really taken its toll on him and his family.  

I have talked briefly about essential oils with them, but they are skeptical, since 'nothing else' has really worked - and money for them is really tight.  I keep thinking if he did a cleanse, and used some specific oils, we could really help him, but I want to be able to go to them with other people's testimonials - so he can see it's not just coming from me.

Any suggestions or testimonials would be appreciated.  Thank you so much!

Julie Ann - Go and give him an Massage Blend Massage just on the feet.   Let him feel the difference for himself.  This ALWAYS works for me.....skeptics no more!

Pat - I agree with Julie Ann, showing is better than talking about essential oils.

Annie - I spent 10 years with varying kinds of "issues" from kidneys trying to shut down, to tests for Lupus (negative), unexplained weight gain, then finally a diagnosis of "Fibromyalgia".  The problem was it didn't STOP at fibromyalgia, I broke my arm and it wouldn't heal etc.....  At one point a Dr. looked me right in the eye and told me I was a hypochondriac!!!  Thankfully, I had the support of my family, however, living in chronic pain for sooooo long and trying to raise 4 children and participate in their lives and not being able to be who I was finally took its toll.  I was prompted by the spirit to call a Naturopathic Doctor I had seen off and on for many, many years and hadn't ever given him a shot at my situation, I called him in desperation and told them I was suicidal.  He stopped with his patient right then and there and called me back.  We talked for a bit and he convinced me to come in for another "test", I was hesitant but agreed.  It wasn't cheap, as he put it "I'm going to cast a very big net and see what fish we catch"  Well, I was sooo deficient in Human Growth Hormone he was surprised I had made it this far AND I had plastics poisoning!  We began HgH replacement therapy and began an aggressive detox program. He wasn't much of a believer in EO's but I insisted on using them along the way as well.  I don't remember anymore all the ones I used, but I never, ever drank water without Lemon and there was an oil for liver support that I rubbed over my liver 3 times a day.  I used multiple oils from another company (this was before (...)) for hormone balancing, on my feet every morning and every night.  I used our home sauna (which we invested in after my husband had a heart attack and 5 way by-pass) every other day and stayed in it until I sweated profusely having drank a very large glass of water with Lemon and taking 1000 grams of Vitamin C and 5 or 6 essential fatty acid caps first.  The Doctor had me on various Thorne brand supplements for detoxing as well.

I won't say it was a quick fix, it's been 4 years and we're still at it (with far less aggression to be sure) AND I am healthier than I can remember being in a very, very long time.  I have no more fibromyalgia symptoms, unless I am exposed to some kind of chemical or automotive fumes etc.  And then all I do is ramp it up with my supplements/oils and get in the sauna.  I will be taking HgH supplementation the rest of my life and Vitamin D therapy, as well as B-12 shots.  I'm ok with that.  My quality of life has improved 200%.

So in closing, I would go into detail about all I did, but truly, I think this kind of situation needs to be tailored to the individual. My husband had lead and mercury poisoning so his detox was very different from mine the only think that was the same between us is Lemon water, vitamins, minerals and LOTS OF ESSENTIAL FATTY ACIDS and the sauna, everything else was tailored differently.  If I was trying to counsel someone in my shape, who had no way of paying for the tests and Doctor’s help, I would muscle test, muscle test and pray and help them to develop their intuition to get things going.  I would get them on the (...) wellness pack, Lemon water, NO CAFFINE, no fake sugars, and eliminate as many ingested and exposure toxins as they are possibly aware of.

I know my body now, if I start to get a little headache, I stop and look around, what could I be breathing or smelling that could be toxic?  Can I remove myself?  Get some Cleansing Blend on the tip of my nose and get moving away from the source, because I know, that's my first signal.  It's kind of sad that my body had to get my attention with soooo much pain before I was willing to say "Hey, I can take responsibility for this".

P.S.  A positive affirmation I said constantly was this:  I want to feel better, nothing is more important to me than that I feel good, So it is my intent to think thoughts, speak words and do things that harmonize with that which feels good to me!

 

Heidi - Since joining (...) and expanding my health horizons, I have learned that most auto-immune diseases are caused by candida over-growth.  I am wondering where I might find some research to send to my loved ones with auto-immune diseases to reinforce this knowledge? RA and Lupus in particular.  Thanks!

Charly - I would be quite careful in that characterization. I have an autoimmune disease called mixed connective tissue disease. This autoimmune disease includes several different diseases including lupus, rheumatoid arthritis, reynauds, scleroderma, fibromyalgia and other goodies. It is definitely not caused by Candida, and is detectable as an actual marker in the blood that is genetic. While I am sure there are many autoimmune diseases that can be attributed to Candida in terms of flareups, it is a little bit broad to say that it is caused by Candida. I have heard this many times, and it always makes me a bit uncomfortable.

Sharon - And while candida is often promoted as a "cause" it is actually a side effect of a poor immune system and/or toxicity.  We all have candida bacteria and need it but it is only when it goes out of balance that there is a problem.

Anne - I heartily agree that it does (...) a dis-service to make sweeping generalizations about causes and cures in the definitive.  Just as allopathic medicine really has few definitives on this class of illnesses and their treatment, alternative therapies have similar potential for benefit. The huge plus is that EOs have yet to be shown to have the same long list of negative side effects that many allopathic treatments have... I've been thrilled to reduce many and even eliminate daily need for a couple of my medications, but EOs alone are not enough for my condition. I wish modern medicine would incorporate "alternatives" to pharmaceuticals into the standard of care rather than the two be seen as such opposites in an "either/or" mentality.

Belma - Hi Heidi. While I think it is wonderful that you want to share (...) info with your loved ones, I have to agree with the other ladies who've commented. I cringe whenever someone tells me that they have the cure for my MS, or my daughter's Lupus. I love that you want to help the people you care about who have auto-immune disorders. (...) oils and supplements definitely do help with the symptoms. However our diseases are not caused by candida. I feel very uncomfortable whenever I see this brought up. It’s a piece of it and perhaps a misunderstanding that gets shared. I would agree that inflammation is an issue with both Lupus and MS. I've had MS for over 26 years, and my daughter was diagnosed with Lupus four years ago. My hope would be that you would share with those you love, that (...) oils and supplements can possibly improve their quality of life. Frankincense and Peppermint sure have made an amazing difference for me! Our bodies are all different and even those of us who have the same diagnosis, many times do not have the same issues or symptoms. So the same oils or supplements may not work exactly in the same way for each of us. But it is so worth it to explore what might help.   I applaud you for wanting to help those people in your life with auto-immune disorders! Please do understand that. I suggest that you present this information to them by saying that inflammation is commonly caused by candida, and (...) has ways to help with that. You might also find out what their specific issues are and then recommend which oils would help.

Protocols folks recommend for children

 

 

Diet and Nutritional complements to essential oils

 

What Science & Research are saying

 

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NOTE: The advice shared in this site has not been evaluated by the FDA. The products and methods recommended are not intended to diagnose, treat, cure or prevent any illness or disease, nor is it intended to replace proper medical help. As members offer or look for answers, kindly understand that essential oils work to help to bring the body into balance - thus helping the body's natural defenses to restore homeostasis. Essential oils are not used to "treat" medical problems.